| Milret2 |
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| #1 | Hi all. I see several people have been asking about Vertex 950. It is still in, I think, stage two trials and still looking interesting as far as responses. A quick scan of the internet turned up a support site that has a fair amount of comment about vertex 950 by both people interested in it and folks who have been in or are on trials with it, I am leaving that site here and hope that some find it of worth for support/info. http://www.hepcboy.com/hepatitis-c/forum-watch/ <-- on this page look to the right an click where it says "Vertex 950"
From that site I also found this web page that talks about recent info released in Europe about how trials are proceeding --> http://www.natap.org/2007/EASL/EASL_17.htm
HepCBoy.com looks like a friendly and informative site to me. I hope it helps.
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| lynn |
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| #2 |
cant believe this is not the big talk of the town right now ,,,i would scream for this treatment if i could get it right now ,,,,right your congress man or women ,,,SCREAMING OUT LOUD |
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| chemplantman |
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| July 15, 2008 at 05:33 AM |
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| #3 |
This is just a quick note for all the people awaiting the release of vx950. I actually manufacture the drug, and there have been no problems in making it. The problem seems to be at the FDA's feet in releasing the drug. The clinical trials have went well, with only small side effects reported.I can imagine many people are frantic to get hold of this. It was just to enlighten you a little, and to press the need for you to pester hell out of the FDA. |
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| lynn |
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| July 19, 2008 at 05:48 PM |
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| #4 |
how do we pester ,,were do we pester give me a phone number a email address any thing |
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| QBSue |
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| #5 |
I am three weeks into my pegatron combination treatment. I have been so unwell for so long that I seem to have pushed family and friends out of my life. I am used to being the rock that everyone else leans on and since my being the one who needs friends and family support I find myself alone and very lonely. I have no one to talk to or to care what is going on with me. That combined with my reaction to the medication has left me feeling very ostracised. You certainly find out who your friends are when you are down and out. I don't blame most of them as they are used to being able to lean on me for strength and when the rock is in need of someplace to lean everyone seems unequipped to handle the rock"s weakness and need. Understanding only helps a little while I hold on tight to the idea of the future being so much better than the past and present. I am looking so forward to being able to deal with the everyday things that have been getting more and more difficult to deal with over the past several years. It would be very helpful to have a buddy who is in the same place as I am and who would like someone else to bounce things off of. I believe that having a sounding board is far better than turning to medication that may or may not have lasting side effects. I keep telling myself that I have made it through worse things and that the way I feel is temporary and that I will have a new life to look forward to after I make it through these treatments. |
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| paul |
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| #6 | QBSue:
I know it has benn a year since you posted this i trully hope you are ok. I went through the interveron & Rib for 10 months in 1997 (nasty) unfortunatly it did not work.Mentaly it messed with my head for a few years. I would say staying active/exersise and eating well helped me quite a bit. |
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