| Big Mama |
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| #31 |
Hi, Just wanted to say thanks for this site. My fiancee has been on the meds now for about a month and he has experienced many of these same feelings of rage and depression. We did know these are some of the side effects, however it's nice to know he's not going crazy. The sleeping pills helped and were a real life saver on injection night (he slept through most of the symptoms) . Anti-depressants helped for some of the other feelings. He is still very exhausted all the time, but he is hopeful that the treatment will work and that is what is keeping him going. GOOD LUCK EVERYONE! |
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| Daniel Paiement |
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| July 06, 2007 at 05:21 PM |
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| #32 |
Ya its me one of the infected by the Canadian gove saying apologies with throwing money around I was 22 when i was first infected i lost a leg by gunshot accident and little did i that Bullet hep would get me 3 times, 3 times unlucky 3 they say. The give me narcotic's for the arthritis it caused. Respiridol for my brain problem {ANTI PSYCH MED} And i take travel sickness pills on a reg basis because of that ol sic felling. Now i was cured but not felling any better and they say i should but i don't same old same old. some days even worse!!!.And i found out that we may get more apology money from big old brother because my wife got it throw a blood tras in 97 HA HA how bout that ehh!!!And just settled for people infected from 58!!!!-98. Without a blink they have no idea how sic we are do they the money they throw wont last for ever will it and we are starting Early retirmen because of this apology sic sic sic . As far i i know i want my heath back and threes not enough money they can throw that will get it back for us DO NT SETTLE SUE SUE SUE them fuckers were broke and sic ma be that was there plan all along.
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| Chantal C |
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| July 28, 2007 at 05:44 PM |
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| #33 |
I Just started this treatment 6 weeks ago and i feel like i'm on an emotional roller coaster.I'm in pain tired emotional and mad and i hate it.I just feel weird all the time and i'm in a relationship and it feels every time my moods change or i'm in pain he closes up and pulls away and this is definitely playing on me and feeling pretty alone in this process and i still have 4 and half months to go. Really trying to keep positive and pray but i just feel like i'm losing my mind.I looked this up on the internet cause it doesn't seem other people understand or believe what you say ,understandable i guess. I guess if they haven't gone through it they can't understand.I just have alot of fear of what will happen to my relationship because of this treatment and i feel really bad that he has to experience all the different moods and watch me go through this and not understand.
yours truly and wishing all success
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| smile |
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| July 28, 2007 at 08:36 PM |
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| #34 |
The worst part is that it is unpredictable rage. I was doing fine the other night until I stubbed my toe. I freaked out and start jumping up and down and tried to smash through the floor in my house. I live in an old victorian house so it could be possible. My wife just went running out of the room and the whole house was shaking.
I havent been aggressive towards my wife or pets but they just know to leave the room when it hits me. Funny, even my dogs and cats know when to leave the room. I just try to remember that it is the meds when it comes on and try to lie down and relax.
You cant really blame your boyfriend for closing off his feelings when you get angry or sick. He is probably going into self-defense mode and trying to make it through this hard time. Remember, this is not just difficult for you. The person he fell in love with is changing and he cant do anything to protect you. We should all be grateful for the people that are sticking with us during this.
On a side note, I found a great way to vent your rage. Take it out on phone solicitors. I actually run for the phone when it rings now, hoping that it is a telemarketer. I tear into them like a psychopath. The rarely call back.
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| Milret2 |
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| July 28, 2007 at 09:32 PM |
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| #35 |
The medications used to treat hep c can and do change brain chemistry ... which can lead to sudden mood changes, anger management issues, depression, and suicidal ideation. There are ways to try to help such issues. Talk with your doctor about these things. He or she may be able to recommend effective therapy or to refer you to others who can help. Getting help for such issues can be life saving .. both in dealing with the immediate situation and in possibly allowing you to finish needed therapy.
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| Allison |
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| #36 |
Hi Chantal, as many people of here know my hubby went through this last year. I also went through hell and back with him. As Milret posted once on here, it is tough but if he loves you he will hang in there with you. I could not believe how much my hubby changed. He was a very caring, placid guy and turned in to Mr. Hyde. I nearly walked but just reminded myself it will get better once treatment is done. I went away for a week by myself when our daughter was in camp and it did me the world of good. Hubby told me he had to focus on him and didn't give a rats you know what. That wasn,t the guy I knew.
After treatment finished I got the love of my life back. We are stronger than ever. If you need someone to talk to I have unlimited calling on my phone any where in North America. I have not been on treatment but I feel as if I have. So if you need to talk or would like someone to listen to your partner I can e-mail you my phone number. I would sure like to help other people through this if I can, just by listening.
Hugs Allison
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| Steve Jackson |
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| #37 |
A brief history:
I took ifn alone for 3 1/2 years and riba monotherapy for 13 years. Riba does not cause rage, ifn does.
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| smile |
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| #38 |
Lexipro completely cleared up my Pega rage. The side effects of Lexipro were bad the first week but most of them cleared up. I only take 10mg instead of the perscribed 20mg. It actually makes the whole treatment process much easier for you, family and work.
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| Lynn |
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| #39 |
I was diagnosed with hep c 2 years ago and as much as i would love to be treated for it , i am so scared of the side effects of pegatron.I am a single mom of 2 and i do have to work full time and come home and do chores as well. I work out a lot and eat healthy but i dont think that is going to matter in the long run.. After reading all of these messages posted here i do not think i can go through with the treatment.If someone out there has anything positive to say about this, drug, please post it. The chances of this drug working for me is a mere 40%. |
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| LA |
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| #40 |
Hi Lynn,
I officially reached SVR (6 months clear after completing 1 year of treatment) two years this Christmas. It wasn't a walk in the park, but I did work and missed very few days.
For me it is worth of it to be rid of the virus, and to know I don't have something eating up my liver. I had genotype 1B, which is the hardest to treat.
You probably should have a liver biopsy to determine liver damage. If you have liver damage, and a high viral load that might be an indication to proceed with treatment. It is so sad to read about people who have ESLD (end stage liver disease) primarily because they did not do anything about the problem.
Anyway that's my 2 cents worth. Just wanted to let you know that treatment is doable, and there are lots of people on this board who have successfully kicked the dragon's butt.
You may want to visit the Janis and Friends website. They have a discussion board too.
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| Milret2 |
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| #41 |
I would add to what LA said. I am now more then six years out in sustained viral response (considered cured by most GI, hepatologists, and infectious disease experts now a days) after treatment for 1A hep c in 2000 with the old ribaviren and three times a week regular interferon shots. It was not a walk in the park nor was it the horror show that many message board messages portray it as. My own very experienced hepatologist felt my chances of sustained remission were around ten percent when I elected to be treated. My liver biopsy, age, and gender all suggested to me that I should at least take the chance as I fully agree with LA on this "It is so sad to read about people who have ESLD (end stage liver disease) primarily because they did not do anything about the problem." and I decided a trial was in order for m,y own situation.
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| Dave |
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| #42 |
I was lucky I wasn't fired or arrested. I screamed at a co-worker, got right up in her face and threatened her. I busted up my neighbors fence with a ball bat because they had basically stolen my dog -- six months prior. Threatened to kick his butt out in the street, then threatened the entir family. Went to bed pissed of, woke up pissed off. They sent me to a mental health place, and they put me on Abilify. It's a drug for bipolar disorder. Luckily, I survived. Genotype 2b, SVR. Thank God. |
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| Mo |
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| #43 |
Hi
Started treatment for second time a month ago. First time round I didn't get irritated or angry but this time round - bit different! Had to go to bed hyperventilating for 2 hours because I was so angry about something that wouldn't normally phase me.... Still now that the other side effects have kicked in and the antidepressants, I'm so lethargic I can't be bothered being angry :) Every cloud......
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| gina |
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| #44 |
Hello. I'm sorry to hear that. To me, a simple decongestent like benedryl has made me go off! I absolutly think it was wrong for your spouse to file assault charges! Honestly, if you did this kind of crap often or there was a real feeling of a threat I could see it; but no way, you don't want those guys on your back. Hope everything works out there- |
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| Alice Spear |
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| March 25, 2008 at 09:45 AM |
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| #45 |
Hello all. I was diagnosed With Hep C type 1, June of 2007. I have no idea where I contracted the virus, not that it really matters. I am a retired nurse,too sick to work. I was very anxious to try the treatment. The pegatron was the way I wanted to go. I was well advised in Halifax,Nova Scotia what to expect. I got very sick after the first three weeks or so.and it was rough for a few months, but I do have some decent days. I lost 40lbs the first few weeks. I have additional medical problems,and because the pegatron is like the chemo, you're immume system is drasically affected. If I had to make the decision again whether to try the pegatron, I would absolutly say YES. The side affects are not fun, and if you rest when your body tells you too, it helps. I am 36the week and my treatment course is 72 weeks. Can I make it? I sure will. LYnn. Dont let the negative parts of this treatment scare you. It will be really rough, also it sounds like your'e body is in pretty good shape. A healthier body will help you thru the treatment. I did not, and don't now have a lot of problem with my nerves. There were a few times I had to bite my tongue. Thankfully my husband has read all the info and spoken with my doctors, so he has learned to maybe ignore me. Some of the reserce will say the mental damage caused by the pegatron is bad. I am 54 years old, My brain tells me when to banish the bad thoughts, and I have brought myself out of a lot of depressing times. I sometimes think my brain has never functioned as well as it does now at times. I am going to stop now, hope to catch up with you all later. Ally |
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